*Based on Remarks at the Big Data East Big Data Innovation Conference, September 9, 2015
I believe in the enormous potential of big data. Erik Brynolfsson and Andrew McAfee, authors of The New Machine Age and leading scholars of the digital economy, have compared the power and granularity of computational science to the transformation in understanding of nature that occurred when Anton Van Leuwenhook first peered at samples through his newly-invented microscope. We are seeing new advances in medicine, in social science, new ways of teasing out causation from correlation.
Data Protection Law & Policy
“Data is the new oil” – This statement by Neelie Kroes in 2011 has since been on everyone’s mind and with the constant development of new technologies, the importance of data has grown dramatically over the past few years and in recognition of this it seems that we have now entered into a new era: the era of Big Data. William Long and Geraldine Scali, Partner and Associate respectively at Sidley Austin LLP explore the potential data protection issues that may arise.
The new year will ring in significant privacy, data protection and cybersecurity changes in the U.S., Europe, Asia and elsewhere around the world. Below are some key developments and possible concrete action items for General Counsels, Chief Privacy Officers and Chief Information Officers:
In November 2012, the UK Information Commissioner’s Office (ICO) published a Code of Practice on managing data protection risks related to anonymization. This Code provides a framework for organisations considering using anonymization and explains what it expects from organisations using such processors.
One of the benefits of anonymization is that the onerous data protection obligations under EU data protection laws, including the UK’s Data Protection Act 1998, will not apply to data rendered anonymous such that individuals are no longer identifiable.
As the Code notes, anonymization can allow organisations to make information derived from personal data available in a form that is rich and usable whilst protecting individuals.
The main good practices and recommendations provided in the Code are summarised below:
- Personal data, anonymization and identification: the Code highlights that the concept of “identify” and therefore “anonymized” is not straightforward because individuals can be identified in numerous ways and re-identification by a third party can also take place. It is therefore crucial for businesses to assess the risk of identification when they decide to disclose anonymized data.
- Ensuring effectiveness of anonymization: the ICO recommends the use of the “motivated intruder” test to assess the risk of re-identification. This test involves determining whether a “motivated intruder”, who is a person who starts without any prior knowledge but wishes to identify the individual from whose personal data the anonymized data has been derived, would be successful. It can be done by (i) carrying out a web search to verify if date of birth and postcode can lead to the identification of a specific individual; or (ii) using social networks to establish if anonymized data can lead to an individual’s profile.
- Consent: importantly, the Code provides that consent is generally not needed to legitimize an anonymization process as it could be logistically onerous or even be impossible to obtain such consent.
- Governance: organisations using anonymization should have in place an effective and comprehensive governance structure that should include (i) a Senior Information Risk Owner (SIRO) with the technical and legal understanding to manage the process, (ii) staff trained to have a clear understanding of anonymization techniques, the risks involved and the means to mitigate them, (iii) procedures for identifying cases where anonymization may be problematic or difficult to achieve in practice, (iv) knowledge management regarding any new guidance or case law that clarifies the legal framework surrounding anonymization, (v) a joint approach with other organisations in their sector or those doing similar work, (vi) use of a privacy impact assessment, (vii) clear information on the organization’s approach on anonymization including how personal data is anonymized and the purpose of the anonymization, the techniques used and whether or not the individual has a choice over the anonymization of its personal data, (viii) review of the consequences of the anonymization programme, and (ix) a disaster recovery procedure should re-identification take place and the individual privacy is compromised.
- Trusted Third Party: a Trusted Third Party is an organisation which can be used to convert personal data into anonymized data. The Code highlights the value of using a Trusted Third Party arrangement especially where a number of organisations each want to anonymize personal data they hold for use as part of a collaborative project. Use of Trusted Third Party arrangements can facilitate large scale research using data collected by a number of organisations without the organisations involved ever having to access each others’ personal data. It also allows researchers to use anonymized data when the use of personal data is not necessary or appropriate, and can be used to link datasets from separate organisations to create anonymized records for researchers.
The Code also clarifies when the research exemption under the UK Data Protection Act can be relied upon to process personal data for research purposes and concludes with explanations of key anonymization techniques and various case studies such as one on the use of anonymization in clinical studies.
The Code which also sets out other good practices and recommendations is welcome having been published at a time when anonymization techniques and the status of anonymized data are key issues for many industries including digital media, financial services and life sciences. Anonymization and the ability to use data will also remain key issues with the current discussions on the proposed EU Data Protection Regulation and clarity on these issues at an EU level would also be welcome.
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